Let me tell you about kidney cancer and its aftermath.
Twelve years ago, my husband had horrific back pain, out of nowhere, and instead of the kidney stones everyone was expecting, he was diagnosed with kidney cancer. Surgery followed a week later, a right nephrectomy. He spent four days in the hospital, came home, recovered, and was back at work (retail) a couple weeks later.
For the next five years, he had a CT scan every three months and a bone scan every six. Nothing else ever showed up, thank God. That was 2009.
Two months ago, he was undergoing a baseline lung CT scan, and the tech noticed something down near his left kidney. The following week, he had an MRI. Kidney cancer again. Twelve years later.
At the end of September, he had a left nephrectomy. He spent nine days in the hospital, on oxygen and with an a-fib event for half of that, in the step-down ICU. A few weeks later, he had another surgery to finish an AV fistula in his left arm, for access.
He’s spent a lot of time dozing, not sleeping much at night; food tastes off, even if he goes off his diet and tries things he used to enjoy; he gets tired easily when he walks around, his blood pressure is up and his oxygen is down.
And then there’s dialysis. Three times a week for four hours, or he’ll die. That’s a fact. He is not eligible for a transplant until he’s cancer-free for five years.
There’s a TV show called B-Positive, a sitcom, cute, entertaining. We still watch it, in spite of the fact that Hollywood is not known for its realism. But holy cow, they really dropped the ball on this one.
See, the first season was all about this geeky guy who ran into a quirky old high school acquaintance, and when she found out he was in kidney failure, she offered to donate one of hers. The main scenes revolve around four or five people in a dialysis clinic, who talk and laugh and joke during treatment, often go out to dinner or have parties or date or whatever.
But damn. I’ve seen the inside of two dialysis clinics, and this is NOT WHAT THEY LOOK LIKE.
You know how, maybe, you’ve walked into a nursing home, and people are sitting around in wheelchairs or regular chairs, and they all look out of it, at the very least, and no one is talking or laughing or joking around? Yeah. It’s like that. Sick people. Not particularly happy people. Certainly not people planning on a night out. It’s depressing as hell.
THAT is the reality.
What else is involved? He’s not supposed to eat much sodium, potassium, or phosphorus. What foods have phosphorus? Every. Single. Thing.
It’s checking vitals once or twice a day, which are transmitted to Mercy Virtual; a nurse practitioner calls once a week to go over everything, or more often if things aren’t looking too good. It’s coordinating appointments and tests with our general practitioner, a vascular surgeon, an oncologist, urologist, cardiologist, and nephrologist—and it took six weeks to get that one. [insert eyeroll]
It’s no showers as long as he has the catheter for dialysis, a couple weeks of wearing a heart monitor, still more outpatient surgery to remove that catheter, weekly blood work and doctor visits.
Because of the effects of dialysis, it’s gone from a seven-day week to maybe three half-days of being able to do whatever he wants—as long as his energy holds out.
Less than two months ago, he was cutting down trees and splitting logs, doing tractor work, and finishing up projects around the farm.
So sorry to hear of this. I’m glad you can write about it, maybe to help process it.
Thanks. It’s taken a while to even write about it…
Robin, I’m so sorry. You both are in my prayers.
Don’t forget to take care of you, too. I’ve been in the caregiver position & it’s physically, mentally, emotionally, & spiritually exhausting.
You really have your hands full. Love & prayers,
Thanks, Charlie! We’re doing okay–not great, but okay. Today. I have my moments…
Tough times for everyone. It’s difficult thinking something has been solved only to have it come back at you again. I’ll worry along with you since I had kidney cancer and surgery hopefully took care of it. And scar from the surgery is something else again, fading with time, thank goodness. Best wishes. I’ll be thinking of you.
Sorry to hear that, Malcolm, I’m not sure I remember it. Then again, lately I’m not sure I remember anything! It’s pretty rare for it to come back after 12 years, so I wouldn’t worry too much. Unless they discovered that it had metastasized, you’ll more than likely be fine. 🙂
Robin, I cannot imagine the changes in your lives due to this. I wish I could help.
Thanks, I wish you could too! How are you putting up fence, cutting branches, and running a tractor? 😉
I knew, from Facebook, that he was going through some sort of medical issue, but I didn’t know what it was. I’m so sorry, Robin.
Thanks. It sucks. A lot.